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Resources
Resources to access that help you with what you need:
*Please check with your local cancer center for more support!
Please check with your nearest cancer center for support groups and a list near you! This is just some national helpful sites.
AYA
(Adolescents and Young Adults)
Some Books that Really Helped Me:
ACC Patients
(Adrenal Insufficiency)
Some Helpful Groups that have helped on Facebook or Instagram are:
Families and Friends
The National Institute of Health has some sibling resources on their website
Alex's Lemonade Stand helps those with little siblings with some handouts
The majority of cancer centers give some helpful information as well, so check in with them to see what is available in your area.
Tips you Have to know:
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Please get an ACC expert to care for you
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Find someone who is your support and takes you to appointments
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Get a great nurse for surgery stays (they know where the snack cart is)
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Let people help you
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Enjoy any and all "Cancer perks"
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Mitotane sucks but it could work so try it and see
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There is some genetic causes if you have them
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IV chemo is available too- EDP is widely used
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Take Lomotil and Zofran if needed
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Liquid IV helps with dehydration
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Be patient with yourself- PTSD can happen
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Get second opinions
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Find support that helps you- you will find your tribe so keep looking if you are having trouble finding them
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Ask questions and understand your diagnosis for as much as your comfortable knowing
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